He gets it from his Jan-Ma

Every since I can remember, my sisters and I have repeatedly been told that we look, act, or talk just like our mom. For those of you who know our family pretty well, you know we are all pretty close knit. Even more so now that we've all had to deal with some tough times. It is amazing what things like this can to do to a family. It can be one extreme to the next. Everyone can fight and take it out on each other, or everyone can get along and enjoy the time that we are given. Our family naturally stuck with option 2. Before Kannon was born, we were told he had a cyst in his brain. We were also told that when he was born he would have to have an Ultrasound on his head, possibly a CT or an MRI. Well, little did we know, he had to have all 3, some more than once! My mom would always say "He just wants to be like his Jan-Ma!" (JAN+Grandma= Jan-MA). So now that is mom's answer to everything, and I have to admit, it makes me smile every time I hear it. So much of what I see in Kannon, I see in my mom. They have both been through so much, and are two of the strongest people I know. When I went to Kannon's geneticist appointment and got the news that he had Tetrasomy i(5p) Mosaicism---most of what the doctor said after that I inadvertently tuned out. Zach had to work, so my mom came with me. I don't like going to the Dr's appointments alone, so I was happy she was there with Kannon and I. A lot of what happened that day reminded me of when I went with my mom to her Dr's appointment, when she was first told she had skin cancer. Even when I asked questions about Kannon's diagnosis, I don't think the answers were truly sinking in. The Dr. went on to tell us that Kannon would have significant developemental delays, respiratory problems, heart problems and/or defects, seizures, and the list keeps going. I ended up calling the genetic counselor back that day--and again the day after--asking more questions. I'm almost sure I was repeating the questions I had asked when the Dr. talked to us the first time, but this time I was ready to comprehend everything...

Still, almost 2 weeks later, I still don't feel like I understand it all. Then, finally it occurred to me. All these answers I thought I was getting, weren't the answers. They were just suggestions. The worst suggestions. Just like on the commericials when they advertise for a new drug, they have to tell you all these crazy insane side effects that probably happened once, but there is only a chance it could happen again. I have to keep reminding myself that Kannon is one out of four. That leaves the door wide open for anything to happen, and for miracles to be made. The Dr's don't hold the answers. All answers are found from above...and as for Kannon, he is writing his own story. Just like his Jan-Ma.

UPDATE: Kannon started his medication, and so far there hasn't been any changes. He doesn't seem to be "sedated"...he sleeps just as much as before. And there hasn't been any change as far as his seizures go. They are still happeninig. The Dr. said it may take a week or so to see any change. However, Kannon is running a little bit of a temperature today. AND he started using his hands to rub his eyes! Which he had never done before lastnight!! yay :)