Sunday, January 22, 2012

If I could write a letter...

I started thinking tonight while listening to the radio how rough the last few days have been. How the one person I felt like talking to was my mom...and while in the car I decided to think of all the things I would want tell her if I were able to write a letter...

It started with me. I would tell her about my graduation and how happy I was to be finished, but on that day one hug & kiss was missing and it belonged to her. I would tell her how the Holidays just aren't the same and how despite how hard we try not to, there is always tears. How I wish she were here to make me smile, because I've been so upset and down, because these past few days have been rough. I would explain to her how I need a hug and a date to pink swirls. I would ask her all kind of opinions on what to do about this and that. I would share with her all my new friends, and the one's that have faded. I would tell her about my new job, how I can make cakes like she used to, and I would ask her to tell me "Just breathe, Kelli, it will be okay." I would tell her thank you for visiting me in those 3 dreams.

Then it moved to Zach and Kannon, and I would share with her how well they are doing. How Zach is trying to work hard for his family, and how God chose an excellent husband and daddy for me. I would tell her ALL about Kannon. How he has progressed so much, and in an odd way Kannon can capture hearts in just an instant. How it's like they are drawn to him, and they support and understand him instantly. I would tell her that I know she's up there watching over him and know in my heart that she is his angel.

Then it moved to my sisters and my dad. I would tell her how a day doesn't go by that she isn't on their mind. That they miss, and love her forever and always. And that they
will always cherish her and how she will never be just a "memory". I would try to explain that she lives through them and a part of her is instilled in each one of us.

Then it moved to Taylor and Jace. Oh, how proud, how PROUD she would be to be called their Jan-ma. How Taylor has gotten SO big and is still her little girl. I would tell tell her how Taylor has held on to the relationship they shared and hasn't forgotten a thing. I would tell her all about Jace and what a little cutie his is. How he is so smart and definitely has a thing for sports. I would tell her that sometimes he gets so excited that he runs the bases with a football, and listen to her laugh again and again.

Then I realized I would tell her a lot...

If I Could Write a Letter
By Kelli Foster

If I could write a letter,
it would be 8,416 pages long.
I would tell you how much I miss you,
and might even write a song.

If I could write a letter,
it would surely make you smile.
It would tell you all our funny stories
and have you laughing for awhile.

If I could write a letter,
it would carry you our tears.
All the one's that we've held in
to overcome our fears.

If I could write a letter,
it would give you a big hug.
It would make up for those we've lost
and be warm, cozy, and snug.

If I could write a letter,
it would show you all you've missed.
It wouldn't leave our home
without it getting kissed.

If I could write a letter,
it would send you all our love.
I would wrap it up all cute,
and be delivered by a dove.

Monday, January 9, 2012

2011 in a Nutshell

I decided since I haven't posted in a while that I would travel down memory lane just a little and recap some of Kannon's main events in 2011! I found this to be really fun actually, and it's amazing just to see how much has been accomplished in just a span of 365 days. In our family, we try to keep it a constant reminder that we never know when our time is...and if there is anyone that had taught us to live each day to it's fullest it's this little guy right here.

So to begin, here is Kannon's picture in January 2011 vs January 2012. He grew like a little weed!

He also had his very first 48 hr EEG at St. Francis Hospital

He was pretty excited!

Then, he figured out to hold up that big ole noggin' twice...I'll explain that here in a minute...

He laughed for the first time & yes we got it all on camera!...It's hard to tell (you have to listen really carefully) because he also toots on there too, so maybe that's what he was laughing at...we know we were! This was a GREAT day in our house!

He also got fitted for his first back brace...and it's the cutest little thing...

And it came in his favorite print...camo!

He also got to stand up for his first time!

On his first birthday (April 1st) we landed ourselves in the hospital for numerous seizures. Which after counting, he was in the hospital a total of 9 times this year.

That day, they didn't keep him overnight. They increased his medication & sent us home in time to celebrate!

Then, the day after his celebration...we landed ourselves back in the hospital. This was a pretty pivotal moment for us. It was then that Kannon's seizures got more severe, and even more out of control. He lost the ability to eat, hold up his head, smile, and some other things as well.

Since he had lost the ability to swallow we made the decision to have a Mickey Button placed. He went into surgery April 6th. Looking back, we estimated that if Kannon had 5 seizures a day (which some days he had 20 plus) he had a total of 1,825 seizures in year 2011.

It wasn't long after that when we made the decision to start him on the Ketogenic Diet. We went to Houston (Texas Children's Hospital) for a week stay and began our "Ketogenic Boot Camp" as we like to call it. It wasn't too bad for Kannon he is after he won the pirate hat making contest... he was pretty happy about & so were we!

When we got home from Houston, he made best friends with his cousin.....Crue. Kannon wasn't sure what to think about him...I think Crue thought he was food ha ha.

He made his first, of many, trips to the zoo!

And the lake! I have been told he looks like a mini Zoolander here!

He had 200+ visits to therapy this last year...and man he loved every bit of it!

Unexpectedly Kannon developed a serious case of pneumonia, which put him in the Pediatric ICU (PICU) for quite some time. He was started on an IV antibiotic used for serious bacterial infections called Vancomycin. In this picture he developed what they call "red man syndrome" from the drug. You can see how red the top of his head is, by the IV. His face/head also started to swell so bad that when you held his head in your hand, it would leave your indentions. They immediately started him on Lasix to flush his body of the fluid & to stop the swelling.

Here he is with his moose we got him in the gift shop to cheer him up a little. His right eye is still swollen shut, but the red had finally gone away. This was a scary time for us all, the Dr's were very close to intubating him, but instead we tried out something else called Vapotherm. He responded very well to it :)

Many people said prayers, and they were answered! They started Kannon on a BiPAP machine (similar to C-PAP). Since then he has made so much progress & has never looked healthier and happier! Here he is on his BiPAP...which was special ordered because there wasn't anyone around that had a BiPAP mask small enough...Pretty cute huh?

Here we are escaping from the PICU for a little while...and getting as much sun as you can in a hospital.

Grandpa came to vist & pass out kisses!

And it wasn't long after returning home from ICU that he started lifting his head again! God is good! Kannon had more energy, endurance, and strength than ever before.

Kannon was the cutest puppy ever for Halloween...!

Kannon also made his debut with Children's Miracle Network at KXY's Love Kids Radiothon.

And surely none of us have forgotten the day Kannon had gotten stuck 35 times for an unneccessary IV. Which they never ended up getting a vein, so in all actuality it was a complete waste of time...and not to mention violation of patient care & patient rights. I have many people awaiting the update on this...and you might laugh...They established a "Common Sense Policy" in the MRI department to keep things like this from happening to other children. I'm not sure how they came up with that name... ;) wink wink ;)

Golden Corral Raised $877 to go towards "Kannon's Fund" at Tinker Federal by raffling off a TV!

He learned how to play the piano!

and the iPAD!

We are thrilled at how well Kannon is doing & we can't wait to see what 2012 has to offer us and Him.

Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
Psalm 23:4